Remembering Ady Barkan

How did Ady inspire you?

Share Your Story

Be A Hero takes on the impossible fights. Big money. Special interests. Powerful politicians. We’ve taken them all on – and won.

About Be A Hero

Ady's Story

Four months after the birth of his son Carl, Ady Barkan was diagnosed with ALS. Confronting his own mortality, Ady decided to spend his remaining time fighting to transform America’s health care system so that it guarantees all of us the care and dignity we deserve and lifting up stories of incredible heroism in the face of injustice.

Learn More About Ady

Ady Barkan and Jamila Headley

About the Be A Hero Team

The Be A Hero team is led by Ady and co-Executive Director Jamila Headley. Together with a group of committed organizers, Ady and Jamila are fighting for a more just health care system in the United States.

Learn More About Jamila

Our Work

Here in the richest country in the world, and everywhere, we believe health care should be a human right. Everyone should have the care they need, no matter who they are, where they live, what job they have or whether they have a job at all. Our team takes on critical fights to transform America’s healthcare system so that it guarantees all of us the care and dignity we deserve.

Past Projects

Expanding access to home and community-based services

Right now, our fight is focused on expanding access to home and community based services by telling the stories of seniors and people with disabilities who, like Ady, rely on home care to live with dignity and respect at home with their loved ones.

We’re taking powerful stories directly to decision-makers, through a grassroots advocacy campaign backed by a multi-state advertising strategy, to demand that Congress act to fully fund home and community based services.

In the Press

Join Us In The Fight

The COVID-19 pandemic has laid bare the brokenness of our healthcare system, and the time is ripe for transformational change. But in order to win, we must build a powerful movement and we can’t do it without you. Join our fight today.